Not everyone writes with a pen
It was a privilege to spend Tuesday evening listening to Carrie Jade Williams talk to Matt and Parul from London Writers Salon.
Carrie Jade won the 2020 FT/Bodley Head young essay writer for this tour de force: My brain is in a war it will lose – writing with Huntington’s disease. To write about such a complex, personal and emotional subject with such lightness is a testament to Carrie Jade and her attitude to life. And she only started writing after she was diagnosed last year at the age of 31.
Carrie Jade ripped up whatever rule book there is about writing and just did it.
I can’t share the interview with you, but Carrie Jade’s essay will give you a glimpse into her life and there’s lots more on her website.
We listened and we laughed as she deftly moved from explaining why she quit the gym after her diagnosis: ’I hated it. The best bit about the gym was the cake and no one should go to the gym for the cake’ to talking about living life with Huntington’s disease, specifically assistive technology (Carrie Jade uses voice control to write).
Apps like Dragon and Otter.ai should become familiar names, along with Alt-Text and closed captions. It’s all very well having simple, clear messages but it’s pointless if we’re making it impossible for everyone to read and engage with them.
Carrie Jade offers free accessibility training and is happy for me to share her contact details here, do get in touch, drop her line I know she’d love to help you: firstname.lastname@example.org